Patient family needs:
perception of Iranian intensive care nurses and families of patients admitted
to ICUs
Sedighe
Iranmanesh1, Akbar Sheikhrabori2*, Sakine Sabzevari3, Mansooreh
Azizzade Frozy4, Farideh
Razban5
1Ph.D.,
School of Nursing and Midwifery, Kerman University of Medical Sciences, Kerman,
Iran
2M.Sc. Student, School of Nursing and Midwifery, Kerman University
of Medical Sciences, Kerman, Iran
3Ph.D.,
School of Nursing and Midwifery, Kerman University of Medical Sciences, Kerman,
Iran
4M.Sc., Physiology Research Center, Institute of Neuropharmacology, Kerman University of Medical Science,
Kerman, Iran
5School of Nursing and Midwifery, Kerman University of Medical
Sciences, Kerman, Iran
*Corresponding Author Email: iranmanesh@kmu.ac.ir,
p.shykhrabory@gmail.com, S_sabzevari@kmu.ac.ir, forozy@gmail.com,
razbanfarideh@yahoo.com
ABSTRACT:
Background and Objectives: In the recent studies about patient
family needs in deference society and cultures, a consensus has done about
patient family needs definition. Inadequate attention to the needs of patient
family causes inappropriate and incoherence care and increases conflict between
patient family and caregivers. Attention to the needs of family of patients who
are in crisis can lead to increase their sense of trust and support and can
help them in getting their decisions in relation to their patient health. The
aim of this study was comparison of the perception of nurses and families of
patients admitted to the ICUs about the needs of families of patients in ICUs.
Methods: This was a cross-sectional descriptive comparative study
which conducted in Kerman University of Medical Sciences. Convenience sampling
was used and patient families of patients who admitted to ICUs and nurses who
work in ICUs were participated in the study. The Critical Care Family Needs
Inventory was used to data gathering. The patient families and nurses' socio-
demographic data were gathered as well. Data analyses were done by using SPSS
version 18. Descriptive and inferential analyses were used.
Results: Totally 105 patient families of ICU patients and 105 ICU
nurses were participated in the study. Data analysis showed there were
significant differences between patient families and nurses perception of ICU
patient family needs (p<0.05). Data analysis according to deferent factors
showed that except Comfort factor, the other factors including "Assurance
and anxiety reduction", "Information", "Proximity and
accessibility" and "Support" were significantly deferent between
two groups (p<0.05).
Conclusion: Nurses' appropriate perception of ICU patient family
needs can lead to adopt the best
approach to meet these needs and can help them to provide family based nursing
care as well.
KEY
WORDS: patient
family needs, intensive care unit patient, critical care, critical care nursing
1. INTRODUCTION:
The family
is the paramount social organ and in fact the most fundamental unit of community
that has the maximum effect on its members. The members of a family are
directly affected by family group.
The stresses and tensions, which
are exerted on one member of a family, may effect on the family entirely and
the disease can cause creation of crisis in the family as one of the stressful
factor (Lancaster and Stanhope, 2000). The knowledge of patient’s family about
disease phases and patient’s requirements may cause the family to become
adapted to stressful situations (Hinkle and Fitzpatrick, 2009).
Many studies have been carried
out regarding needs of patient’s family within several types of cultures and
geographical regions during 20 years ago and all of these investigations
signify acquiring an appropriate and appropriate definition about needs of
patient’s family (Delva et al., 2002). These needs include five categories:
Information, assurance and anxiety reduction, proximity and accessibility, and
support and comfort (Leske, 1991). The exploration
and acquiring accurate response to requirements of patients’ family in
Intensive Care Unit (ICU) may have important impact on stress reduction,
ability and positive adaptability, increase in family’s satisfaction with
patient’s care, and rising assurance (Delva et al., 2002). The inadequate care
about family’s requirements may cause discontinued care, lack of correlation in
patient’s family, and increasing the contradiction and conflict among patient’s
family and care provider (Bijttebier et al., 2001).
The patient’s family needs in
ICUs are always considered as a challenge for healthcare providers, especially
the physicians and nurses since patient’s family relies on healthcare providers
in order to acquire information about patient’s conditions and status and
disease trend (Hashim and Hussin,
2012). Whereas ICU nurses are closely interacted with the patients round- the-
clock thus they can provide an ideal situation to meet needs of patient’s family )O’Malley
et al., 1991). Nevertheless, these needs can be identified only when they are
valuable and efficient and predictable (Gavaghan and
Carroll, 2002). The communication needs of patient’s family and relatives can
offer accurate information about patient’s status as a very important element
in patient’s care (Azoulay, 2001). This is considered
as an important point for the nurses to be able to meet patient’s family requirements
as supporters of patients since patient’s family cannot provide medical care
for the patient under critical conditions. Satisfaction of patient’s family and
meeting of their needs may improve care and support and thus enhancing the
efficient care for the given disease (Miracle, 2006).
In their survey, Chui and Chan
(2007) concluded that those members of family, who are present before their own
patients in ICU units are subjected to stress and anxiety at high level and
also they found that their relative with lower educational degrees might be
exposed to more stress. In a qualitative study, it was reported that members of
patient’s family had two main objectives in their mind where one of them was
that they could be assured about providing best care for their patients and the
other one was to keep in touch with the aforesaid patient. In their study, Lam
and Beauliew (2004) and Pochard
et al (2001) reported that more than two third of the persons, who visit the
patients under critical situation of hospitalization in ICU units, may suffer
from anxiety and depression. The findings derived from exploration done by Hussin and Hashim (2012)
indicated that family members put the hope and assurance on top of priorities
of their own requirements. Similarly, family members agreed that the nurses
were the foremost and most appropriate employees to meet their requirements.
In a study done by Fitzpatrick
and Hinkle (2011) in order to determine the different perception of patients’
relatives, physicians, and nurses regarding the relatives’ requirements for
ones who visit the hospitalized patients in ICU units, they showed that
perception of relatives, physicians, and nurses was only similar in 8 questions
out of total 45 questions in the given questionnaire and there was significant
difference among the attitudes of these three groups in terms of information,
support, and comfort fields. The results came from these studies may reflect
that there is quantitative similarity among the perception in patients’ family
and nurses concerning to requirements of the hospitalized patients’ family in
ICU wards and the nurses often consider requirements of patients’ family less
important toward their families (Hinkle and Fitzpatrick, 2011;Maxwell et al.,
2007).
Whereas a few limited studies
have been conducted in this regard in Iran and particularly in the given
population namely in Kerman City and at the same time given that the nurses in
ICU wards have little time to devote it to patient’s family to meet their
requirements because of high workload and shortage of time thus the present
research was conducted by aiming at the comparison of perception in nurses and
the hospitalized patient’s family in ICU wards.
2. MATERIALS AND
METHODS:
2.1. Study Design
This was a cross-sectional descriptive comparative study conducted in Kerman medical
university hospitals (the largest city in southeastern Iran with a population
of 534,441) where are dedicated to provide timely access for intensive care to
patients in southeast of Iran.
2.2. Sampling
We used the 0.05 percent significance level and the effect size:
(0.5s) 2 to estimate sample size. 105intensive care nurse and 105
patient family (parents, partner, brother, sister and children) participated in
the study by convenience sampling. All subjects were approached during their
regular shift work or being in waiting room and asked to participate in the
study. The aims of study were explained and informed consent was obtained
orally. We used interviews instead of the self-administered method for
illiterate individuals. Sampling lasted from March 2013 to November 2013.
2.3. Measurement tool and
study variables
The study population consisted of ICU nurses and patient families,
aged 18 years and above who their patient were hospitalized in ICU at least 48
hours. Socio-demographic data such as age, gender, educational status, marital
status, job experience and Intensive care experience were asked from the
nurses. Patient family socio-demographic data such as age, gender, educational
status, marital status, relation to patient, duration
of patient ICU hospitalization and patient experience of ICU hospitalization
were gathered.
Table 1.
Variables distribution of ICU patient families and ICU nurses
|
Variables |
Patient Families (n= 105) Frequency (%) /Mean (SD) |
Nurses (n= 105) Frequency (%) /Mean (SD) |
|
Age (yrs.) |
30.82 (± 9.33) |
29.4 (± 4.92) |
|
Gender Female Male |
36 (34.3) 69 (65.7) |
87 (82.9) 18 (17.1) |
|
Marital status Single Married
|
33 (31.4) 72 (68.6) |
31 (29.5) 74 (70.5) |
|
Educational status Illiterate Under
diploma Diploma Above
diploma Bachelor
of nursing MS
in nursing |
2 (1.9) 13 (12.4) 59 (56.2) 31 (29.5) |
103 (98.1) 2 (1.9) |
|
Job Azad Bikar Kargar Karmanddolat Other |
22 (21) 55 (52.4) 4 (3.8) 17 (16.2) 7 (6.7) |
|
|
Relation to patient Partner Father Mother Sister Brother Child |
4 (3.8) 14 (13.3) 17 (16.2) 35 (33.3) 19 (18.1) 16 (15.2) |
|
|
Duration of patient ICU
hospitalization (day) |
7.53 (± 3.83) |
|
|
Patient previous experience of ICU hospitalization Yes No |
20 (19) 85 (81) |
|
|
Nursing Experience (yr) |
|
5.5 (± 3.88) |
|
Intensive Nursing care
Experience (yr) |
|
3.45 (± 2.72) |
Critical Care Family Needs Inventory (CCFNI) was used to access
family needs. The CCFNI consists of 45 items rated on a scale of 1 (not
important) to 4 (very important).This valid Inventory has used in many studies
(Burr, 1998; Lee et al., 2000; Bijttebier et al., 2001; Holden et al., 2002)
and according to those consists of five factors including: Assurance and
anxiety reduction (7 items), Comfort (6 items), Information (9 items),
Proximity and accessibility (9 items) and Support (14 items).
As the Persian translation did not exist for the CCFNI, we
generated Persian language versions of these instruments using a modified
forward/backward translation procedure. In the next step, Content validity was
used to validate the scale. Therefore, the scale had presented to ten experts
to determine the proportionality of each item. To determine reliability of the
scale Cronbach’s a for 30 intensive care nurse and patient
family was assessed that was 0.7.
2.4. Statistical analysis
Descriptive statistics (frequency and percentage, mean, and
standard deviation) and analytical statistics (independent t-test) were
used to analyze the data. To study association between socio-demographic
variables and intensive care family needs, Spearman's rho Correlation
Coefficient and Eta Squared was
used. SPSS version 16 (IBM Corporation, Armonk, NY, USA) was used to analyze
the data. The 0.05% significance level and 10% type-2 error were used in this
study.
3.
RESULTS:
In this study, totally 105 nurses
who were employed in ICU wards at Shifa, Bahonar, and Afzalipoor hospitals
along with 105 family members of the hospitalized patients in ICUs in the
above-said hospitals, filled out Critical Care Family Needs Inventory (CCFNI
questionnaire).
The mean age of the hospitalized
patients’ family members in ICU wards was 30.58 ± 9.60. More than 60% of
patients’ companions were male and married ones. 85.7% of members of patients’
family had education at levels of high school diploma and higher degrees. A
half of the hospitalized patients’ companions in ICUs were jobless. The maximum
dependency between companions and the hospitalized patients in ICU wards was
related to sister of those patients. The mean period of hospitalization for the
patients in ICU wards was 7.53 ±3.83 and more than 80% of these patients had no
former background for hospitalization in ICUs (Table 1).
The mean age of the nurses, who
were employed in ICUs, was 4.92 ± 29.4. 82.9% of the employed nurses were
female in ICUs. Most of the nurses were married and with BS degree.
Table 2.
Comparison of the CCFNI score between ICU patient families and ICU nurses
|
Factors |
Needs |
Patients Family (Mean and SD) |
Nurses (Mean and SD) |
T test |
P value |
|
Assurance and
anxiety reduction |
7) To feel there is hope |
3.70 ± 0.55 |
3.48 ± 0.68 |
2.68 |
0.008 |
|
2) To know
specific facts concerning patient’s progress |
3.52 ± 0.59 |
3.02 ± 0.85 |
5.17 |
0.000 |
|
|
5) To know the expected outcome |
3.52 ± 0.67 |
3.05 ± .080 |
4.68 |
0.000 |
|
|
3) To have
questions answered honestly |
3.39 ± 0.66 |
3.10 ± 0.75 |
3.02 |
0.003 |
|
|
1) To be assured
the best possible care is being given |
3.31 ± 0.70 |
3.21 ± 0.70 |
1.08 |
0.280 |
|
|
4) To feel that
hospital personnel care about patient |
3.30 ± 0.77 |
3.23 ± 0.67 |
0.67 |
0.504 |
|
|
6) To have
explanations given that are understandable |
3.29 ± 0.68 |
3.36 ± 0.61 |
-0.83 |
0.410 |
|
|
Total |
3.44 ± 0.35 |
3.20 ± 0.36 |
4.73 |
0.000 |
|
|
Comfort |
12) To feel
accepted by the hospital staff |
3.67 ± 0.55 |
3.41 ± 0.57 |
3.34 |
0.001 |
|
11) To have good
food available while in the hospital |
3.34 ± 0.55 |
3.24 ± 0.66 |
1.25 |
0.213 |
|
|
10) To have a
telephone near the waiting room |
3.24 ± 0.58 |
3.32 ± 0.58 |
-1.07 |
0.286 |
|
|
9) To have a
bathroom near the waiting room |
3.17 ± 0.61 |
3.25 ± 0.68 |
-0.86 |
0.393 |
|
|
8) To have comfortable furniture in the
waiting room |
3.16 ± 0.68 |
3.34 ± 0.62 |
-2.02 |
0.045 |
|
|
13) To be
assured it is all right to leave the hospital for a while |
2.87 ± 0.77 |
2.91 ± 0.77 |
-0.36 |
0.721 |
|
|
Total |
3.24 ± 0.35 |
3.25 ± 0.38 |
-0.06 |
0.950 |
|
|
Information |
22) To talk to
the doctor every day |
3.69 ± 0.54 |
3.46 ± 0.47 |
0.59 |
0.553 |
|
15) To know
exactly what is being done for patient |
3.64 ± 0.57 |
3.09 ± 0.79 |
5.69 |
0.000 |
|
|
19) To know why
things were done for a patient |
3.50 ± 0.68 |
3.10 ± 0.74 |
3.96 |
0.000 |
|
|
14) To know how patient is being treated
medically |
3.48 ± 0.74 |
3.03 ± 0.71 |
4.40 |
0.000 |
|
|
16) To have specific person to call at
the hospital |
3.41 ± 0.63 |
3.23 ± 0.70 |
1.97 |
0.050 |
|
|
18) To know
which staff members could give what information |
3.30 ± 0.59 |
3.09 ± 0.67 |
2.30 |
0.023 |
|
|
17) To know
about the types of staff members taking care of the patient |
3.24 ± 0.69 |
2.30 ± 0.74 |
9.50 |
0.000 |
|
|
21) To help with
the patient’s physical care |
3.20 ± 0.67 |
3.15 ± 0.73 |
0.49 |
0.623 |
|
|
20) To be told
about chaplain services |
2.90 ± 0.73 |
2.81 ± 0.88 |
0.69 |
0.487 |
|
|
Total |
3.37 ± 0.28 |
3.03 ± 0.55 |
5.59 |
0.000 |
|
|
Proximity and
accessibility |
26) To be told
about transfer plans while they are being made |
3.55 ± 0.57 |
3.30 ± 0.59 |
3.22 |
0.002 |
|
29) To see the
patient frequently |
3.52 ± 0.68 |
2.62 ± 1.07 |
7.32 |
0.000 |
|
|
23) To be called
at home about changes in the condition |
3.50 ± 0.68 |
2.94 ± 0.89 |
5.15 |
0.000 |
|
|
24) To receive information about patient
once a day |
3.50 ± 0.71 |
3.15 ± 0.68 |
3.69 |
0.000 |
|
|
27) To have the
waiting room near the patient |
3.27 ± 0.54 |
3.12 ± 0.76 |
1.57 |
0.117 |
|
|
28) To have
visiting hours start on time |
3.24 ± 0.63 |
3.18 ± 0.69 |
0.63 |
0.531 |
|
|
31) To have
visiting hours changed for special conditions |
3.23 ± 0.72 |
3.02 ± 0.82 |
1.96 |
0.051 |
|
|
25) To talk to
the same nurse every day |
3.18 ± 0.65 |
2.87 ± 0.82 |
3.08 |
0.002 |
|
|
30) To visit at
any time |
3.06 ± 0.84 |
1.57 ± 0.73 |
13.65 |
0.000 |
|
|
Total |
3.34 ± 0.27 |
2.86 ± 0.35 |
10.91 |
0.000 |
|
|
Support |
43) To have directions
as to what to do at the bedside |
3.60 ± 0.51 |
3.39 ± 0.63 |
2.65 |
0.009 |
|
42) To have
friends nearby for support |
3.50 ± 0.54 |
3.18 ± 0.76 |
3.47 |
0.001 |
|
|
38) To have
someone to help with financial problems |
3.50 ± 0.61 |
3.09 ± 0.77 |
4.37 |
0.000 |
|
|
37) To have explanations
of the environment before going into the critical care unit for the first
time |
3.48 ± 0.73 |
3.04 ± 0.71 |
4.40 |
0.000 |
|
|
32) To have a
pastor visit |
3.41 ± 0.63 |
2.70 ± 0.81 |
7.13 |
0.000 |
|
|
|
35) To have
someone be concerned with your health |
3.36 ± 0.57 |
3.08 ± 0.68 |
3.30 |
0.001 |
|
36) To be told
about people who could help with problems |
3.34 ± 0.65 |
3.13 ± 0.69 |
2.26 |
0.025 |
|
|
33) To have a
place to be alone while in the hospital |
3.31 ± 0.64 |
3.07 ± 0.74 |
2.60 |
0.010 |
|
|
39) To have another person with you when visiting
critical care unit |
3.26 ± 0.67 |
2.92 ± 0.69 |
3.57 |
0.000 |
|
|
34) To be told
about people who could help with problems |
3.21 ± 0.68 |
3.08 ± 0.68 |
1.43 |
0.154 |
|
|
40) To be alone
at any time |
3.19 ± 0.65 |
3.02 ± 0.71 |
1.83 |
0.069 |
|
|
44) To talk
about feelings about what has happened |
2.99 ± 0.78 |
2.99 ± 0.64 |
0.00 |
1 |
|
|
41) To feel it
is all right to cry |
2.94 ± 0.72 |
2.82 ± 0.81 |
1.18 |
0.241 |
|
|
45) To talk
about the possibility of the patient’s death |
2.25 ± 1.08 |
2.33 ± 1.03 |
-0.59 |
0.558 |
|
|
Total |
3.24 ± 0.22 |
2.99 ± 0.30 |
6.89 |
0.000 |
|
|
Total |
|
3.32 ± 0.19 |
3.04 ± 0.24 |
8.65 |
0.000 |
The average rate of working
background in nursing field was 5.5 ± 3.88 years while the average rate of
working background was 3.45 ± 2.72 years in ICU wards (Table 1).
There was statistically
significant difference among the attitude of the hospitalized patients’ family
members in ICUs and the employed nurses in ICUs regarding the fields of
“assurance and anxiety reduction”, “information”, “proximity and
accessibility”, and “support” (p<0.05). But perception variable in these two
groups regarding variable of “comfort” showed no significant difference (p>
0.05). The mean value of nurses’ perception about the hospitalized patients’
family needs was at level 3.04 ± 0.27 in ICU wards while the mean rate of the perceived
needs by members of the hospitalized patients’ family was 3.32 ± 0.19 in ICUs
so that there was statically significant difference between these rates (p<
0.05).
Table 3.
Association between the CCFNI score and patient families
demographic data
|
Need score Variable |
Factor A |
Factor C |
Factor I |
Factor P |
Factor S |
Total |
|
Age* |
r = 0.14 p = 0.16 |
r = 0.14 p = 0.15 |
r = 0.04 p = 0.65 |
r = 0.06 p = 0.56 |
r = 0.10 p = 0.30 |
r = 0.18 p = 0.07 |
|
Genderò |
h2 = 0.02 p = 0.17 |
h2 = 0.01 p =0.31 |
h2 = 0.03 p =0.10 |
h2 = 0.00 p = 0.56 |
h2 = 0.00 p = 0.83 |
h2 = 0.00 p = 0.94 |
|
Marital statusò |
h2 = 0.00 p = 0.56 |
h2 = 0.05 p = 0.02 |
h2 = 0.00 p = 0.91 |
h2 = 0.00 p = 0.56 |
h2 = 0.00 p = 0.48 |
h2 = 0.00 p = 0.74 |
|
Educational Statusò |
h2 = 0.03 p = 0.39 |
h2 = 0.02 p = 0.48 |
h2 = 0.06 p = 0.08 |
h2 = 0.03 p = 0.34 |
h2 = 0.07 p = 0.05 |
h2 = 0.06 p = 0.08 |
|
Jobò |
h2 = 0.00 p = 0.99 |
h2 = 0.06 p = 0.20 |
h2 = 0.00 p = 0.97 |
h2 = 0.01 p = 0.94 |
h2 = 0.03 p = 0.60 |
h2 = 0.02 p = 0.82 |
|
Relation to patientò |
h2 = 0.07 p = 0.23 |
h2 = 0.06 p = 0.25 |
h2= 0.16 p = 0.00 |
h2 = 0.07 p = 0.24 |
h2 = 0.04 p = 0.50 |
h2 = 0.10 p = 0.053 |
|
Duration of patient ICU hospitalization* |
r = -0.01 p = 0.90 |
r = -0.11 p = 0.27 |
r = -0.03 p = 0.73 |
r = -0.02 p = 0.85 |
r = -0.12 p = 0.20 |
r = -0.07 p = 0.50 |
|
Patient previous experience
of ICU hospitalizationò |
h2 = 0.00 p = 0.47 |
h2 = 0.01 p = 0.42 |
h2 = 0.00 p = 0.76 |
h2 = 0.02 p = 0.18 |
h2 = 0.02 p = 0.20 |
h2 = 0.00 p = 0.56 |
* Spearman rho's coefficient
ò Eta squared
Table 4.
Association between the CCFNI score and nursesdemographic
data
|
Need score Variable |
Factor A |
Factor C |
Factor I |
Factor P |
Factor S |
Total |
|
Age* |
r = 0.09 p = 0.35 |
r = 0.06 p = 0.54 |
r = -0.09 p = 0.34 |
r = -0.14 p = 0.16 |
r = 0.10 p = 0.34 |
r = 0.01 p = 0.95 |
|
Genderò |
h2 = 0.00 p = 0.93 |
h2 = 0.00 p = 0.70 |
h2= 0.01 p = 0.22 |
h2= 0.01 p = 0.38 |
h2 = 0.02 p = 0.14 |
h2 = 0.01 p = 0.30 |
|
Marital statusò |
h2 = 0.00 p = 0.83 |
h2 = 0.00 p = 0.63 |
h2 = 0.04 p = 0.03 |
h2 = 0.01 p = 0.35 |
h2 = 0.01 p = 0.24 |
h2 = 0.02 p = 0.20 |
|
Educational
Statusò |
h2= 0.00 p = 0.97 |
h2 = 0.00 p = 0.77 |
h2 = 0.00 p = 0.67 |
h2 = 0.00 p = 0.59 |
h2 = 0.01 p = 0.28 |
h2 = 0.00 p = 0.70 |
|
Nursing
experience* |
r = 0.20 p = 0.04 |
r = 0.18 p = 0.06 |
r = -0.01 p = 0.90 |
r = -0.07 p = 0.46 |
r = 0.15 p = 0.14 |
r = 0.13 p = 0.30 |
|
Intensive
nursing care experience* |
r = 0.19 p = 0.047 |
r = 0.08 p = 0.39 |
r = -0.01 p = 0.90 |
r = -0.06 p = 0.51 |
r = 0.11 p = 0.27 |
r = 0.10 p = 0.30 |
* Spearman rho's coefficient
ò Eta squared
According to viewpoint of
patients’ family members, among 45 questions in this inventory, the mean rate
of 40 questions was greater than 3 (very important and important choices) and
based on the nurses’ attitude, the mean value of 33 questions was greater than
3. Likewise, according to attitude of family members, the five following needs
could acquire the maximum significance among other requirements, respectively:
“To feel there is hope; to talk to the
doctor every day; to feel accepted by the hospital staff; to know exactly what
is being done for patient; to have directions as to what to do at the bedside”.
From nurses’ point of view, the five following needs had the maximum importance
among other requirements, respectively: “To
feel there is hope; to talk to the doctor every day; to feel accepted by the
hospital staff;to have directions as to what to do at
the bedside; to have
explanations given that are understandable”. (Table 2)
There was no significant
relationship among personal characteristics of family members of the
hospitalized patients in ICU wards (including age, gender, educational degree, occupation,
reliance on patient, and period of patient’s hospitalization) and the score
derived from CCFNI questionnaire (p>
0.05). Conducting the statistical analysis on the relationship among
demographic variables of family members of the hospitalized patients in ICUs,
separately based on these variables, showed that there was significant
relationship among variables of “marital status” and “comfort” (p< 0.05).
Similarly, a significant relationship was seen among variables of “reliance on
patient” and “information” (p< 0.05). No relationship was observed between
other demographic variables and score of CCFNI questionnaire separately based
on variables (p> 0.05) (Table 3).
There was no significant
relationship among score of CCFNI questionnaire and demographic variables in
the employed nurses in ICUs (p> 0.05). The statistical analysis indicated
the relationship between demographic variables among the employed nurses in
ICUs, particularly based on sores of variables separately and this showed that
there was significant relationship among variables of “working background” and
“assurance and anxiety reduction” (p< 0.05). Likewise, a significant
relationship was seen among variable of “working background in ICUs” and field
of “assurance and anxiety reduction” (p < 0.05). No significant relationship
was observed between other demographic variables in the nurses with the score
derived from CCFNI questionnaire separately based on variables (p > 0.05)
(Table 4).
4. DISCUSSION:
The results of data analysis in
this investigation indicated that there was significant difference between the
score of the perceived needs by the nurses and patients’ family. Similarly, the
results came from data analysis, separately based on variables, showed that
except for variable of comfort, there was significant difference in other
fields of “assurance and anxiety reduction”, “information”, “proximity and
accessibility”, and “support” between two groups. Likewise, there was no
significant relationship between individual characteristics in family members
of the hospitalized patients in ICUs and the score derived from CCFNI
questionnaires. But, there was significant relationship among variables of
“marital status and field of comfort” and “reliance on patient with the field
of information”. There was no significant relationship among score of CFNI
questionnaire with demographic variables in the employed nurses in ICUs. But,
there was also significant relationship among variables of “working background
and field of assurance and anxiety reduction” and “working background in ICUs
with field of assurance and anxiety reduction”.
In a study which was conducted in
Sweden, a significant difference was seen between scores of variable of the
perceived needs among patients’ relatives with the nurses in the fields of
information, support, and comfort. The results of investigations, which had
been carried out by Takman and Severinsson
(2006) and Fitzpatrick and Hinkle (2011) in USA, also indicated that perception
of patients’ relatives, physicians, and nurses from the needs of patients’
relatives might significantly differ in the fields of “information”, “support”,
and “comfort”.
The findings from this
investigation showed that the needs in the field of assurance and anxiety
reduction had the maximum mean score based on the viewpoint of patients’ family
and nurses and among sub-variables in this field, the highest preference is
related to sub-category of “To feel
there is hope” based on the attitude of both groups. In a survey done by
Fitzpatrick and Hinkle (2011), the needs in the field of assurance was ranked
at fourth position in terms of importance so for this reason, the given finding
is not complied with our study. Similarly, American families allocated the
highest needs in this field to variables of “To be assured the best possible care is being given” that this
need was placed at fourth rank in our study. Moreover, the nurses selected the
highest priority to variable of “To
have questions answered honestly” where in our study; this requirement
is placed at fifth rank. Likewise, according to attitude of patients’ family
and Swedish nurses, the highest need was ascribed to variable of “To know the expected outcome” while
this need is placed at second and sixth ranks based on attitude of patients’
family as well as nurses (Takman and Severinsson; 2006). Also in a survey done by Molter (1979),
like our study, among 10 purposed needs, the variable of “To feel there is hope” was the
highest priority (Molter, 1979; Al- Hassan and Hweidi,
2004). In an study which was conducted by Hweidi and
Al-Hassan (2004), the relevant needs to field of assurance, which were at
highest preference based on attitude of Jordanian patients’ families, the
highest micro needs in this field was allocated to “To have explanations given that are understandable” while this
has the least importance in our study. In their investigation, Abazari and Abbaszadeh (2001)
found that need to “To be assured the
best possible care is being given” has the highest preference from
patients’ families view point while the nurses have mentioned this need as
their own second priority and least important need in this field was “To have explanations given that are
understandable” according to nurses’ attitude while this micro need was
placed at second priority for nurses in our study.
Most of the conducted studies
have introduced information as the most important variables in group of needs
while “need for receiving information” was placed at second rank in our study
based on patients’ families’ attitude and sub- category of “To talk to the doctor every day” has
the highest importance according to patients’ families and nurses. In the
exploration that was done by Hweidi and Al-Hassan
(2004) in Jordan, the need to information was ranked at second position and “to talk to the doctor every day”
field had the highest importance as a need so that this finding was in line
with our study. In the investigation done by Chen et al (2006), need to
information and “To be assured the
best possible care is being given” variable had the highest priority. In
another research that was done 72 hours after hospitalization in ICU ward in
Belgium, the variable of need to information was ranked at the highest level
among the needs (Bitjttebier et al: 2001). Similarly,
Verhaeghe et al (2005) in a revision study have
purposed the need to information as a global requirement for patients’ family
while none of these studies were complied with the results of our
investigation. In several studies which have been carried out by Fitzpatrick
and Hinkle (2011) in USA and Takman and Severinsson (2006) in Norway, The patients’ family and
nurses have expressed the field of information as their own paramount
preference so that the sub- category of “To
know exactly what is being done for patient” had the highest priority
from viewpoint of patients’ family while according to findings from our study,
this variable has been reported as second rank based on patients’ family
viewpoint and as fifth preferred rank according to nurses’ attitude.
The findings in our study has put
the needs in the field of “proximity
and accessibility” according to view from the hospitalized patients’
family in ICUs and this variable has been ranked in third position based on the
employed nurses’ viewpoint in this ward and based on the attitude of both
groups, the sub- category of this field under title of “To be told about transfer plans while they are being made” had
the highest priority. The results of the conducted studies in Jordan have also
put the needs in this field at third priority but they differed from them in
that the sub- category of “To receive
information about patient once a day” had the highest priority in this
study (Al-Hassan and Hweidi, 2004) while in our
study, this micro need is placed at third rank based on attitude taken by
patients’ family and nurses. The results came from the studies, which have been
carried out by Takman and Severinsson
(2006) in Sweden and Norway; Bijtteber et al (2001)
in Belgium, and Fitzpatrick and Hinkle (2011) in USA indicated that patients’
family and nurses have ranked the relevant needs in the field of proximity and
accessibility at the lowest level of importance so this finding is not complied
with the results of our study. In a study done by Molter (1979), 10 important
needs were posited by these families where the need to “To see the patient frequently” had the lowest priority based on
nurses’ view while this variable acquired the 8th rank among our 9
purposed needs so accordingly this finding is in line with results of our
investigation but patients’ families have put this need at their own fourth
priority. In another investigation, the participants put the need for “To be called at home about changes in
conditions (of their patients)” as the highest priority while according
to findings of our study this need can be ranked at third position and based on
the nurses’ view, this need is placed at sixth position of importance.
The findings in this study showed
that the needs in the field of “support” are placed as fourth priority based on
the attitude of patients’ family and the nurses. And among sub- categories in
this field, the highest preference have been allocated to variable of “to have directions as to what to do the
bedside” according to patients’ family and the nurses’ viewpoint. The
investigation done by Leske (1991) indicated that the
sub- category of “support” including “to
know exactly what is being done for patient” is the paramount need for
patient’s family with critical status since this may cause the patient to
personally receive the best care from the family while in our study, this sub-
category of need has been placed at third rank based on patients’ family and
also at eighth rank from the nurses’ view. According to the findings of the
conducted study in USA, which have dealt with review on need for the family of
hospitalized patients in ICU ward, the results indicated that the relevant
needs to field of “support” has been placed at third rank based on attitude of
patients’ family and also it is ranked at second place according to the nurses’
opinion (Hinkle and Fitzpatrick, 2011).
In their revised study, which was
concerned with the needs of hospitalized patients’ family in ICU wards in
Jordan and done by Hweidi and Al-Hassan (2004), and
also Naderi et al (2013), in their reviewed
investigation, examined 15 studies regarding the requirement of family of the
hospitalized patients in ICUs and concluded that most of studies in this
regard, have posited the field of “support” at the lowest level among the needs
of patients’ family. This issue has reflected that the families are too
involved in care for the patient as a member of their family that they might
ignore their own requirements while they think about the support for their
patient and assurance for his/ her treatment.
In another investigation, which
dealt with the experiences of relatives of the hospitalized patients about
support and participation in ICU ward, the results indicated that participation
and support serve as contributory factor that is done by professional care
providers for the sake of comfort and empowerment of patients’ relatives in
order to take care of their patients and furthermore this may improve their
self-reliance and increase participation in providing care for the patient (Bailey
et al, 2010) while it has been reported from other conducted studies during
recent years that hospital modern technology pay no attention to subject of
support from patients and their companions and their families have not been
adequately supported in such a way that in a survey that was conducted by Hussin and Hashim (2012) in
Malaysia, variable of “support” had the lowest importance based on the opinion
of families of ICU hospitalized patients. Probably, one could interpret its
reason in that it is difficult to provide adequate and appropriate support from
family members upon hospitalization of one its members, particularly if s/he
suffers from a serious disease therefore one way for improving quality of
support from companions of patients is that to meet their needs in another
fields during period of patient’s hospitalization in ICUs.
The need to “comfort” has had the
lowest important based on the opinion of patient’s family in this study while
the first priority was devoted to need to “to feel accepted by the hospital
staff”. In the conducted studies by Al-Hassan and Hweidi
(2004) in Jordan and also the investigations done by Hinkle and Fitzpatrick
(2011), the needs of this field were placed at fourth order while in USA, this
need is ranked at the second priority based on attitude of patients’ families
and it is ranked at third order from the nurses’ opinion. In a study that was
carried out in Sweden, the most important need in this field was ascribed to “to
have comfortable furniture in the waiting room” while in our study this
requirement is ranked at fifth order from viewpoint of patients’ family and
also as the second priority according to nurses’ opinion (Severinsson
and Takman; 2006).
The findings in this study refer
to the existing significant difference between demographic variables of family
and fields of comfort and information. In another study done by Abazari and Abbaszadeh (2001), it
has been referred to the existing difference among way of giving answers to
questions and personal characteristics of family members including gender and
marital status. Similarly, in the investigation which was conducted by Abazari and Abbaszadeh (2001),
the significant difference was implied among way of responsiveness with working
background while the findings of our study also refer to the existing
significant difference among working background in ICUs and way of
responsiveness in the field of “assurance”.
5. CONCLUSION:
In the current research, assurance and anxiety reduction have been
considered as the basic structure that expresses some of basic needs for
companions regarding patient’s status and care trend and premonition of
disease. Training and receiving adequate information about several issues such
as patient’s status and treatment plan is one of the important concerns and
needs for family of patients. Giving information to family members may
contribute to improving their knowledge about what occurs for them and if they
are inclined they could help the patient more than ever. Proximity and accessibility
and support may also interpret the pivotal concepts of need to frequent visits
to the patient, to talk about plans for transfer of patient, need to
information, and emotional support. These concepts also express some effective
basic needs on individual health of the companions and their capability to
continue playing care- providing role in the hospital as well as after their
discharge. Paying no attention to these needs and lack of meeting these needs
on time and such situations may be due to lack of perception and inappropriate
review of the given situation and ignoring the value of care-taking role for
care- providers. In order to reduce stress and conflict and to strengthen
familial care-takers, it is required for professionals to perceive their
personal experiences and to act in coordination with their concerns in order to
be able to provide better care and support. The properly perception of nurses
from the needs of family members of the patients may be very efficient in
taking the best approach toward meeting these needs and also taking several
strategies based on their important requirements.
6. ACKNOWLEDGMENTS:
The authors thank the nurses and
families of ICU hospitalized patients of Shafa, Bahonar and Afzalipour Hospitals
for their contribution to our data collection.
7. REFERENCES:
1.
Abazari F. and A. M. A.
(1380). Psychological needs - social, family, patients
admitted to the CCU and ICU nurses from the perspective of family members.
Journal of Medical Sciences University - Qazvin Therapy, 19, 58-63.
2.
Mojgan Naderi, Fatemeh Rajati, Hojatolah Yusefi, Mohamadreza Tajmiri and Siamak Mohebi (2013).
3.
M. Naderi, a throwback F.,
Joseph H., M. and Mohebbi Tajmir
S. (1392). Family needs of patients in intensive care. Journal of Health Systems Research, 9 (5), 473-483.
4.
Al-Hassan
Musa Ali, HweidiIssa
M (2004). The perceived needs of Jordanian families of hospitalized, critically
ill patients. International Journal of Nursing Practic.10, 64–71.
5.
Azoulay E,
Pochard F, Chevret S, Lemaire F, Mokhtari M, Gall J, Dhainaut J, And Schlemmer B
(2001). Meeting The Needs Of Intensive Care Unit Patient Families A Multicenter
Study. Am J RespirCrit Care
Med. 163, 135-139.
6.
Bailey
JJ, Sabbagh M, Loiselle CG,
Boileau J, McVey L (2010).Supporting families in the
ICU: A descriptive correlation study of informational support, anxiety, and
satisfaction with care. Intensive and Critical Care Nursing.26, 114—122.
7. Bijttebier P, Vanoost S, Delva D, Ferdinande P, Frans E (2001). Needs of relatives of critical care patients: perceptions of relatives, physicians and nurses.Intensive Care Med.
27(1):160-5.Received on
03.03.2014 Modified on 10.05.2014